Tonsils and Misery

WOW! I have not had a chance to write on here in awhile.  Alot going on.  Kymber had her tonsils taken out Monday morning (October 28, 2011).  I woke her up that morning at 530am and headed to the hospital.  She was quiet the whole car ride which is so unusual for her and she couldn't even have a drink.  She normally wakes up first thing and has a drink.  We checked in and she walked the halls and waited to have her pre-op "relaxation" meds.  After they gave that to her, they took us back to the holding area to meet the dr.  She was sooooo loopy.  She was throwing her head back, laughing and just making the craziest faces.  They wheeled her away at about 720am and at 809am they called me to meet the dr.  He said everything went great.  They then took me back to her and she was awake and hysterical.  I had planned on reading or relaxing most of the hospital stay .... I figured after a major surgery she would be so exhausted and drugged up she would sleep.  WRONG.  In the next 24 hours she slept 4 hours. We are on day 5 and hopefully tonight it will be more sleep.  Right now, cross my fingers, she is in her bed and might stay there.  We were taken to her room for an overnight stay.  She was dying of thirst, screaming for a drink.  They finally brought her drinks, and she took down 2 apple juice containers within minutes.  She ate her jello and was doing great.  She played the rest of the day like nothing ever happened. Then that night.  WOW.  She was up ALL night.  She slept an hour, was up a few, slept an hour, up an hour.  Total of maybe 4 hours of sleep max.  The next day was terrible.  She refused to drink or eat and we couldn't leave the hospital until she would.  She finally took enough sips to leave at 3:30pm.  That night she didn't do any better and the next day was MISERABLE.  She was in so much pain and frustration that nothing calmed her.  I was not expecting this type of reaction from tonsil surgery.  I mean.... if she was a few months older it is an outpatient procedure.  We are still consistently taking the pain meds.  Instead of a dose of 4 every 4 hours we are now doing 3 every 3 hours and it seems to be better for her.  It brings back so many memories of how she was when she was colic.... identical excpet now she is old enough to throw and kick and toss.... very hard.  Also, 30 lbs is alot harder to constantly carry around than 9lbs.  Hopefully in the next couple of days she will start getting back to her self, which isnt always cake but a lot better than this.  On that note, things with Kymber still are very difficult.  I am the only person that can soothe her, no one can hold her, her dad can barely take care of her.... if I am in the room she will kick and scream to get to me.  She has horrible intense tantrums, super easily frustrated, cannot self soothe... I could go on.  First Steps is going to be evaluating her to see where she is developmentally (in all areas) but most specifically to see where she is in her social/emotional development.  If she is delayed enough they will start services.  Not sure what all it means yet, but I'll find out more next week.  I actually disabled my Facebook because people can be so ignorant in their opinions and advice on Kymber's behaviors.  Dr. Sears definition of a High Needs Baby/Toddler fit her to a T and people don't seem to grasp the concept that she is not the typical 2 year old... which means the typical solutions to problems do not work with her.  Just as when she was a baby and people say how babies love car rides, swings, etc..... she screamed entire car rides and never used a swing.  She is different and some people cannot understand that.

Tonight we went to a Halloween event.  Cailey dressed in her butterfly costume and Kymber in her Dorothy.  It wasn't a lot to do, and wasn't that neat to us.... but Cailey said she had a lot of fun.