Did I hear that right!?

I haven't had a chance to type up anything in awhile! Getting alot of hat orders and only get a chance to do hats and the computer at night after Kymber goes to bed.... but she's with Grandma right now so I'm trying to cram in as much as I can into a few hours!

Monday morning Cailey came out of her bedroom and said how she wishes she could have a day off today.  I told her that I wished I could too.  She looked at me with a very confused look and said ...."A day off from what?????"    FROM YOU! Ok, I didn't say that ( I was about to have a 7 hour break from her and she would most definately kindly remind me I was about to have a break from her), but I did tell her Id just like a break!

I left the bathroom after getting Kymbers teeth brushed and she always stays in there with Cailey and brushes them more herself.  Cailey came and got me and said I had to come see this.  I walk in and Kymber was cleaning the toilet with her toothbrush =/


Can't think of much to write about right now, my brain is going everywhere trying to decide what I can get done.... so off to do all that!

Halloween

Kymbers scabs are starting to fall off from when she had her tonsils removed.  I read that the pain can flare during this time.  Her attitude and behavior is SOOOOO demanding and hard right now.  It's already hard, and then pain and discomfort on top of it, she is TERRIBLE.  Hopefully better in a few days.  I can't take much more!  Poor thing doesn't know what's going on so I know its hard on her too.  We aren't having to do pain medicine as often as before so it is slowly getting better.

Saturday we went to the pumpkin patch again, but a different one with Jerime's boss and his wife and daughter.  The girls had a lot of fun playing and seeing the animals.... but I didnt get any pictures except the one Jerime took of us before we left :(

Kymber went as Dorothy again tonight...  Originally for Halloween Cailey was going to be a Butterfly... she wore it to the event on Friday.  Then over the weekend she wanted to be something else, so she dressed up as a witch to match Grandma Pat in her outfit. :) I had bought a shirt to wear, it was too small so I took it back and was just going to wear a dress and boots, and Cailey's cowboy hat.  Well, the dress was too tight and the hat didn't fit.  So I didn't dress up at all.  I got Jerime an Angry Birds shirt this year and forgot to get a picture of all of us together.  Kymber was super cranky all day and up til we were actually out getting candy.... of course that made her better!  The first couple houses she didn't know what was going on, but then she started running up to the doors with Cailey... it was so cute to watch... and it reminded me of the first time with Cailey going trick or treating. 

Tonsils and Misery

WOW! I have not had a chance to write on here in awhile.  Alot going on.  Kymber had her tonsils taken out Monday morning (October 28, 2011).  I woke her up that morning at 530am and headed to the hospital.  She was quiet the whole car ride which is so unusual for her and she couldn't even have a drink.  She normally wakes up first thing and has a drink.  We checked in and she walked the halls and waited to have her pre-op "relaxation" meds.  After they gave that to her, they took us back to the holding area to meet the dr.  She was sooooo loopy.  She was throwing her head back, laughing and just making the craziest faces.  They wheeled her away at about 720am and at 809am they called me to meet the dr.  He said everything went great.  They then took me back to her and she was awake and hysterical.  I had planned on reading or relaxing most of the hospital stay .... I figured after a major surgery she would be so exhausted and drugged up she would sleep.  WRONG.  In the next 24 hours she slept 4 hours. We are on day 5 and hopefully tonight it will be more sleep.  Right now, cross my fingers, she is in her bed and might stay there.  We were taken to her room for an overnight stay.  She was dying of thirst, screaming for a drink.  They finally brought her drinks, and she took down 2 apple juice containers within minutes.  She ate her jello and was doing great.  She played the rest of the day like nothing ever happened. Then that night.  WOW.  She was up ALL night.  She slept an hour, was up a few, slept an hour, up an hour.  Total of maybe 4 hours of sleep max.  The next day was terrible.  She refused to drink or eat and we couldn't leave the hospital until she would.  She finally took enough sips to leave at 3:30pm.  That night she didn't do any better and the next day was MISERABLE.  She was in so much pain and frustration that nothing calmed her.  I was not expecting this type of reaction from tonsil surgery.  I mean.... if she was a few months older it is an outpatient procedure.  We are still consistently taking the pain meds.  Instead of a dose of 4 every 4 hours we are now doing 3 every 3 hours and it seems to be better for her.  It brings back so many memories of how she was when she was colic.... identical excpet now she is old enough to throw and kick and toss.... very hard.  Also, 30 lbs is alot harder to constantly carry around than 9lbs.  Hopefully in the next couple of days she will start getting back to her self, which isnt always cake but a lot better than this.  On that note, things with Kymber still are very difficult.  I am the only person that can soothe her, no one can hold her, her dad can barely take care of her.... if I am in the room she will kick and scream to get to me.  She has horrible intense tantrums, super easily frustrated, cannot self soothe... I could go on.  First Steps is going to be evaluating her to see where she is developmentally (in all areas) but most specifically to see where she is in her social/emotional development.  If she is delayed enough they will start services.  Not sure what all it means yet, but I'll find out more next week.  I actually disabled my Facebook because people can be so ignorant in their opinions and advice on Kymber's behaviors.  Dr. Sears definition of a High Needs Baby/Toddler fit her to a T and people don't seem to grasp the concept that she is not the typical 2 year old... which means the typical solutions to problems do not work with her.  Just as when she was a baby and people say how babies love car rides, swings, etc..... she screamed entire car rides and never used a swing.  She is different and some people cannot understand that.

Tonight we went to a Halloween event.  Cailey dressed in her butterfly costume and Kymber in her Dorothy.  It wasn't a lot to do, and wasn't that neat to us.... but Cailey said she had a lot of fun.

Cheerleading and Potty Training

Well .... I can't remember what all I typed last time now.  We are scheduled to remove Kymbers tonsils and adenoids on Oct 24th.  Im nervous but really excited this means sleep for everyone and that she will feel better and rested.  She is doing so good developmentally.  She is now stacking up to 8-9 blocks!  She is slowly combining 3 words but it is not real clear yet.  She jumps up and down better.... before she didn't really come off the ground, now she is starting to actually come off the ground instead of just pushing up and down.  She is actually telling me she has to use the potty in time now.... instead of telling me AFTER she's gone.  let's hope it keeps up!!  She is loving playing dress up and hair/make up already.  She can even walk in high heels.... she even ran through the house in them.  Cailey is really enjoying Kymber now that she is playing those things.

Cailey is doing Showstoppers Cheerleading.  She had her first package and really enjoyed it.  She was even more flexible than the cheer teacher! LOL  She was not shy at all and tried her hardest at the cheer moves.  I think she'll do really good in it. I'll get pictures of her in her uniform soon :)  Seems like it's been awhile since Cailey has said something that just made me laugh out loud....so I'm sure there's some on the way! :)

crazy week!

Things have been CRAZY.  Last Monday Kymber had her sleep study.  She did well with having the wires hooked up to her and staying overnight at the hospital.  They called right away Tuesday with the results and said she was just over the average limit for sleep apnea, so not a big concern, but if she wasn't sleeping good at night then she could benefit from removing her tonsils and adenoids.  She had 14 obstructions that night but no sleep terror.  She wakes with almost every obstruction, and they averaged 8seconds to 10 seconds without breathing.  We go tomorrow to the ENT for follow up on the study and to discuss removing her tonsils.

Then.... Tuesday the worse experience to this point in my life.  We were at Walgreens and Kymber felt really hot when we were leaving.  She wasn't acting different and didn't have symptoms of being sick so I passed it off.  When we were driving out of the school from getting Cailey, Cailey told me Kymbers eyes were watery and she looked really sad.  I looked back and her eyes were rolled behind her head, her mouth was wide open drooling, and she was slightly twitching.  Seizure didn't come to my mind because I have only heard of them, and I thought full convulsing body was a seizure.  People came to help, called the ambulance and I was so scared, I thought I was loosing her.  She finally came to, spit up a bunch of saliva, then laid there on the blanket in the school drive, and fell asleep.  The ambulance took us to the hospital and she slowly came back to normal.   It was a febrile seizure.  Since her fever went from normal to 103 in about 30 minutes, it caused a seizure.  Scariest day of my life.  I cannot even explain the fear I had when I saw her in the way. 

Kymbers speech is REALLY growing!  she was saying "big girl" over and over then she said "dada, big girl!!!" haha.  She has said so many new words I have forgotten them!  Pop, big girl, spongebob (bobbob), poop, in here.... really copying what we say now too. 

Cailey is doing great in school.  At the beginning of the year she tested recognizing 6/54 and last week she tested 32/54!!!

A jumble of updates on Kymber

Kymber is finally starting to put herself to sleep.  Tonight she laid in my lap and fell asleep... I know that's not completely by herself, but its alot better than rocking her the whole time and patting her to get her to settle down!  She is developing so fast it is crazy.  She's beeing working on putting on clothes, socks, shoes.... she hasn't gotten it yet but she keeps trying hard!  She is able to zip (when its started) and unzip ... which means I can't keep her jacket on her =/   She pretend plays alot too, which she's been doing quite awhile now.  She pretends to cook, she pretends to eat with her kitchen set, plays barbies, shops, all those "make believe games".    She got her cash register out and then went to my purse and got my wallet out haha.  It's so cute to watch.   She is also showing a lot of empathy lately.  Cailey fell and got hurt and was sitting holding her foot.  Kymber went over, kissed her on her head and patted her.  Then she sat down and held Cailey's foot and looked at it.  So sweet, they love each other so much.  She is finally starting to use "mine" correctly.  It used to be when you told her "That's mine, dont touch."  She'd say "mine??".  Now she is actually doing the same thing, referring to her things.  I went to take her sippy cup and she said "no no, mine".  We were at the doctors office and I was explaining things she does (About her nightime crying, etc).  Kymber pointed to herself and said "Me?".  haha.  I think she is starting to show interest in colors, she has said blue and green and is trying to say yellow.  She will sometimes get "blue" correct when you ask her.  She also enjoys to copy your writing.  She gets out her notebook and starts to write then hands the pen and paper to you to write.  You write her name or something down and she takes it back and scribbles over the part where we wrote.  Also starting a thing when she laughs, she will laugh and tilt her head back and put her hand up over her mouth when she's laughing.   She has her morning routine down and likes to brush her own teeth and her own hair (I help after she has done it herself, although she hates to have help and tries to insist on doing everything herself! -- which is where frustration and temper tantrums are getting BAD at times!) She loves to smell candles and lotions and all that.  After she has smelled it she will put it up to your nose to have you smell it too.  She used to just listen when she was on the phone with Grandma, now she is starting to talk back and laugh while on the phone.  She has to walk around the house while talking and uses arm gestures.  When it's time to say bye, she doesn't say it, she holds the phone out, looks at it, and waves goodbye.  She is starting to jump up and down and thinks it is funny.  Loves to hold your hands while jumping or just having you jump while she is jumping.   She also likes running laps around things.... around the table, around the tree in the yard, around the car in the driveway.  We were looking at the photo album and she saw a picture of Cailey and got excited and started waving hi to her in the picture.  I am sure there is so much more to write down and I just dont think of it, becuase it seems like I will never forget this stuff, but I know I will so I want to keep a little journal of what I can :)

Sleep Apnea

The last time we were at the Ear, Nose and Throat specialist he had me watch for signs of sleep apnea for Kymber.  Went back to see him today and he is confident that is the issue she is having.  She breathes raspy all night long, chokes/coughs throughout the night, sleeps better in the recliner, heavy heavy wetting at night time, night terrors are getting bad, wakes up confused and crying ALL the time even naps, morning and night time, has only slept completely through the night a few times since birth... still up a couple times a night, very irritable through out the day. 

SO.... he said that tonsil sizes are measured on a scale of 0-4 and hers are around a size 3, so even if it weren't sleep apnea, he wants to remove them.  But to know what her oxygen levels and to monitor her sleep, we go for a sleep study.  Our consultation with the sleep lab is on Monday and then we will schedule the study and then surgery.  Let's hope sleep and better moods are in our future! :)

She did so good at the doctors, we were stuck in there for an hour in a tiny room with so many tempting things to touch and get into lol.

I also have no more cd player in the van.  Kymber likes to sit in the van and play, and pretend to drive.  I take the keys out and let her while I sit in the driveway or garage and work on something.  Well in between checks she stuffed quarters into the cd player :( 

Cailey's teacher wrote and she said that Cailey is already showing some progress which is GREAT but Cailey told me that she doesn't like school because it is so hard.  I dont know what to do to keep her encouraged. I've told her it will get easier and easier, but I want her to enjoy going, not dread it.  They have tutoring beginning next month for her.... I will take her Tuesdays and Thursdays at 730am for tutoring.  I have to think of something to make it more exciting for her.